Ethical Governance of Biomedical Big Data

Advancing Social Justice and Human Rights in Digital Health

19 December 2024

Innsbruck, AUSTRIA

Register HERE from 15 September, 2024

Join us for an engaging event on Fairness and Rights in Digital Health: Ethical Challenges for Your Data.

The event is open to the public and aims to foster dialogue among interdisciplinary experts, policymakers, students, and the general public on the ethical challenges surrounding biomedical big data.

Participants will have the opportunity to listen to and engage with leading academic experts, as well as representatives from the Council of Europe and the World Health Organization (WHO). The Dilemma Café will provide a space for rich discussions and the exchange of perspectives, aiming to promote understanding, knowledge, and fair implementation of ethical practices for societal impact.

 International Conference                           Panel Discussion                                Case Studies

WHY THE DATAETHICS International Conference

The DATAETHICS Conference aspires to be a leading international event on the ethics of Biomedical Big Data (BBD). It aims to foster communication among students, researchers, practitioners, policymakers, and the general public, all united by a common goal: to establish fair and ethical transnational guidelines for the responsible handling of BBD across diverse scientific disciplines.

REGISTRATION

Open to DATAETHICS Winter School students, researchers, practitioners, policymakers, and the general public, all united by a common goal: to establish fair and ethical transnational guidelines for the responsible handling of BBD across diverse scientific disciplines.

Please note that spaces are limited, so be sure to register early to secure your place.

There are no participation fees – participation is free of charge. The organisers do not cover or reimburse any participation-related costs, i,e, travel, accommodation, meals.

To ensure broad access, the event will be streamed online, reaching audiences across Europe and beyond. You are welcome to join us in person in Innsbruck on 19 December 2024 – subject to limited available spaces, or virtually. Venue details and links for online participation will be provided in Autumn, upon registration, directly to the registered participants.

Register HERE from 15 September 2024

OUR SPEAKERS

The event features talks from 12 prominent international speakers:

Morning programme

• Prof. P.J. Wall, Trinity College Dublin
• Dr. Elisa Houwink, Mayo Clinic
• Prof. Orsolya Peter, Semmelweis University
• Dr. Georgios Exarchakis, University of Bath
• Prof. Ciara Staunton, Eurac Research
• Prof. Francis Megerlin

Afternoon programme

• Dr. Laurence, Lwoff, Head of Human Rights and Biomedicine Division Council of Europe
• Prof. Deborah Mascalzoni, WHO technical advisor
• Prof. Gabriele Buchholz, University of Hamburg
• Prof. Silke Schicktanz, University Medical Center Göttingen, President Academy for Ethics in Medicine
• Prof. Barbara Prainsack, Director of Governance of Digital Practices, University of Vienna
• Prof. Andre Krom, Chair Dutch Society for Bioethics (NVBe), member of the Committee on Population Screening (Health Council of the Netherlands) and the subcommittee Ethical and Societal Aspects (Netherlands Commission on Genetic Modification)

alongside the representation of the Data Protection Division Council of Europe

CONFERENCE DETAILS

The event is sponsored by the Eurolife Network and the Ministry of Science and Culture of Lower Saxony.

Don’t miss this unique chance to be part of the conversation on the future of digital health and data ethics!

TENTATIVE PROGRAMME