Big Data, Big Implications: Data Protection in Biomedicine
4 July - 8 July 2022 hosted at the University of Barcelona, Spain followed by a short virtual collaboration on a flexible schedule The call for applications is now CLOSED
THEME SUMMARY
Due to the increasing importance of the exploitation of Data in health and in order to unleash the full potential of health data, an establishment of the European Health Data Space is being discussed.
Some new concepts challenge our existing ethical and regulatory framework including the exploitation of medical records, the use of research data, the introduction of new technologies such as Artificial Intelligence (AI). Patient’s data are used and reused for many different purposes and common concepts as informed consent, control and ethical oversight, require revision.
While the development of safe spaces to use data for health is of fundamental importance for the European Union, the new data science and AI technologies raise some issues regarding their ethical, societal and legal implications that need to be addressed. These include issues concerning fair access, control, privacy, transparency, security, accountability and justice.
This Summer School will offer a unique set of lectures and activities enabling participants to familiarize themselves with the value chain of ethical, social and legal considerations in the field of Biomedical Big Data (BBD) driven developments.
WHY THE DATAETHICS SUMMER SCHOOL
This 5-day course offers a unique opportunity to listen to lectures from leading and established cross-disciplinary experts in data curation and privacy, Data use, ethics, biomedicine, and related fields. Through a matrix of lectures, interactive sessions and small group assignments, we create a flexible environment allowing for students to acquire new knowledge framed around a dilemma story. This approach furthers the ability of students to apply newly-gained knowledge in true-to-life scenarios. The course also offers ample opportunities for networking with peers and thematic experts from different leading European medical institutions, as well as external speakers from academia and industry.
Join us to debate the significance of coupling ethical with scientific considerations of the curation and handling of biomedical data, and learn about the latest developments in data science, bioinformatics, and AI in (bio)medicine.
Some of the topics covered in the DATAETHICS Summer School are:
- Data Ethics and Data Protection Legislation in Health Research & Biobanking
- Big data and Health Data challenges
- AI ethics – technological perspective
- Trustworthiness in intense data research
- Fundamentals of Big Data use, IA, and other data intensive frameworks models in (bio)medicine
The tentative programme will be uploaded shortly.
LEARNING OBJECTIVES
Through your participation in the course, you will learn about the fundamentals of coupling and implementing data driven research, data management and ethical considerations. Through the group exercises based on a real-life case study, you will gain the basis to analyse, categorise and address key ethical considerations of the use and reuse of data in biomedicine and understand how to frame appropriate approaches for your everyday research environment in biomedicine. Through the opportunity to debate on a true-to-life dilemma, you will develop understanding on how to assess the use of Biomedical Big Data in the context of the ethical implications that inevitably follow it, and how to leverage ethical consideration in decision making. Participation in this course will foster your transversal skills and equip you with cutting edge knowledge on big data relevant to your study, research or internships.
OUR SPEAKERS
The expertise of the speakers covers a broad spectrum of research and application interests from bioethics, health policy and social studies of medicine, to cutting-edge genomics, analysis of large heterogeneous high-throughput data-sets and AI solutions for biomedicine.
The course will feature lectures from prominent international speakers:
Prof. Deborah Mascalzoni (Medical University of Innsbruck)
Prof. Oriol Pujol (University of Barcelona)
Dr Isa Houwink (Leiden University Medical Center) & Rick Overkleeft (4MedBox)
Prof Anne Hauschild (University Medical Center Göttingen)
Dr. Mahsa Shabani (University fo Ghent)
Dr Marco Roos (Leiden University Medical Center)
Veronika Popa (EURORDIS)
and more!
VIRTUAL COLLABORATION
The school will be further augmented by student participation in a virtual collaborative exercise focusing around the dilemma story introduced on Day 1 of the course, and will be based on a flexible schedule that can be organised around your commitments. This activity, taking place following the Summer School 2022, will be enhanced by a learning methodology structuring knowledge and developing soft skills based on value education. Participation in this exercise is obligatory for all participants to the DATAETHICS Summer School 2022 and its completion is the precondition for earning the DATAETHICS Open Badge.
The involvement and synergy of students and the DATAETHICS education trainers in the exercise is designed to allow for an equal dialogue. This virtual activity will end with an online assignment.
AWARD
Students participating in the DATAETHICS Summer School 2022 will be awarded a certificate of participation. Furthermore, students will receive the DATAETHICS Open Badge for recognition of their qualifications, achieved via the practical exercise of applying the DATAETHICS training and knowledge in the process of the virtual collaboration.
This innovative certification method – the DATAETHICS Open Badge –allow the participants to digitally showcase the skills and competences they gained during the Winter School and the virtual exercise. The ultimate achievement recognised via this badge will be the report produced upon the completion of the practical exercise.
PARTICIPANTS PROFILE
The course welcomes BSc, MSc and PhD students from the fields of medicine, biomedicine and life sciences, and priority is given to students from the DATAETHICS Partner Universities. Proficiency in written and spoken English is required.
To ensure active participation and exchange with teaching staff and fellow participants, as well as transnational character of the course, a maximum of 30 participants will be admitted to this course, with balanced representations of participants per DATAETHICS partner institutions. In addition, in case of equal quality of applications, the following groups will be given priority in the selection process:
- Students with disabilities
- Participants to the DATAETHICS virtual exercise, who did not participate in the DATAETHICS Pilot School, Summer School 2021 or Winter School 2022.
Please note, Candidates from DATAETHICS partner institutions have priority in selections. Candidates from non-DATAEHICS institutions will only be nominated if the quota of 30 students from DATAETHICS partner institutions is not fulfilled.
Participation (travel and accommodation) of 18 selected students from the DATAETHICS partner institutions (with the set quota of 2 students per partner institution) will be funded by the DATAETHICS project.
The accommodation and travel costs of the remaining 12 selected students will be supported by the project.
APPLICATION
Required documents: Electronic Application Form, CV and Motivation Letter (minimum 200-300 words explaining the predicted impact of the participation on the Candidate’s academic/professional career).
Candidates should complete the Application Form and together with the annexed documents, submit the application following the guidelines indicated in the online form.
Deadline for Applications: 17:00 Central European Time (CET) on Tuesday, 7 June 2022
All applicants will be notified on the selection results by 15 June 2022 through personalized email notification
